There has been a lot of talk recently about ALS/Motor Neuron disease due to the Ice Bucket Challenge and wanting to raise awareness of the illness and raise money to find a cure.
There has been an MS campaign going on for month, but does not involve gimmicks, called the Treat Me Right campaign where people are asked to help fight for the right treatment at the right time for people with MS, whatever their situation and wherever they live.
There seems to be a unbalanced distribution/availability of MS drugs depending on where you live - you get a better choice of drug if you live in England/Wales but not Scotland/Ireland and there has been all the talk recently about medically prescribed Marijuana being available in Wales and not rest of UK. Marijuana is good for those with MS as it is with other chronic illnesses - it helps with the spasms people suffer from.
The campaign is aimed at bringing a change and making everything available everywhere. We are called to sign up to the Treat Me Right campaign and help make four goals a reality by 2016:
- All licensed MS treatments available on the NHS to everyone eligible for them
- Regular reviews of treatment and care by MS specialists for everyone with MS
- All people with relapsing remitting MS invited to talk with a specialist about their treatment, in light of new disease modifying drug (DMD) options in 2014
- Accessible information about treatment options, and support to be equal partners in decision-making, available to all people with MS
To find out more click on Treat Me Right and to sign up click here Sign Up. I signed ages ago and have had responses from two MP's in the Antrim area so far - one from DUP and one from SDLP and both very positive views. So go ahead sign up and spread the word - and you don't have to get covered in ice to do this.
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